LuMind Foundation and Research Down Syndrome Merge to Create Leading Source of Private Funding for Down Syndrome Cognition Research

Lumind-RDS 2015

LuMind Foundation and Research Down Syndrome have combined resources and programs. Together, these organizations contributed nearly $12 million to stimulate cognition research, resulting in the discovery of multiple drug targets and supporting the initiation of four clinical trials. March 2, 2015 (Marlborough, Mass.) – The LuMind Foundation (formerly the Down Syndrome Research and Treatment Foundation …

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Research Down Syndrome Announces 2014/2015 Grant Awards to Fund Down Syndrome Cognitive Research

Research Down Syndrome (RDS) has announced funding for five grants to support Down syndrome cognitive research. RDS is committed to supporting the identification of the causes of the intellectual impairments associated with Down syndrome and to facilitating the development of pharmacological therapies to improve memory, learning and communication in persons with Down syndrome, and to …

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DS-Connect: The National Down Syndrome Registry

It has been nearly a year now since the NIH launched the first National Down Syndrome Registry. Participation in the registry is free and voluntary. Individuals with Down syndrome, or family members, on their behalf, may sign up to create personalized profiles with information about their health histories, including symptoms, diagnoses, and medical visits. The website …

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Inaugural 24-Hour Relay Run For Research

Research Down Syndrome thanks the 24-Hour Relay Run for Research organizers Lisa Arnoa and Matt MacDougall, and all the runners who participated in this RDS fundraiser held in Clark, NJ on Friday and Saturday, June 13-14. The team members took turns running a 1 mile loop, before passing off the baton to the next runner. …

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First Annual WDSD Virtual Run/Walk

An idea from RDS supporter Siobhan Pritchard led to the first annual Research Down Syndrome WDSD Virtual Run/Walk on March 21. Over 200 participants across the country ran or walked some variation of 3…2…1 to raise awareness of Down syndrome cognitive research and raise funds to support this remarkable medical initiative. Siobhan was assisted by other parents …

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Clinical Trials Update

In the past year, Roche initiated a new multi-national screening protocol to assess individuals with Down syndrome, aged 12-30. This is a screening protocol to assess adults and adolescents with Down syndrome for eligibility in an upcoming study of RG1662. Participants will undergo assessments to evaluate their eligibility for potential enrollment in an anticipated Phase II clinical study which will …

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RDS 24-Hour Relay Run for Research

  The RDS Inaugural 24-Hour Relay Run for Research is designed as a team event, in which each team member takes a turn running 1 mile around a 1-mile loop. Upon completing the mile, that team member will pass a baton to the next runner up. The run will continue as such for a 24-hour …

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