Clinical Trials Update

In the past year, Roche initiated a new multi-national screening protocol to assess individuals with Down syndrome, aged 12-30. This is a screening protocol to assess adults and adolescents with Down syndrome for eligibility in an upcoming study of RG1662. Participants will undergo assessments to evaluate their eligibility for potential enrollment in an anticipated Phase II clinical study which will …

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RDS 24-Hour Relay Run for Research

The RDS Inaugural 24-Hour Relay Run for Research is designed as a team event, in which each team member takes a turn running 1 mile around a 1-mile loop. Upon completing the mile, that team member will pass a baton to the next runner up. The run will continue as such for a 24-hour period …

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First Lady Mary Pat Christie Announces Drumthwacket To Light the Way On March 21 To Recognize National Light The Way Initiative

Thank you First Lady Mary Pat Christie for your continuing advocacy in support of Down syndrome cognitive research! Trenton, NJ – Raising awareness of advancements being made in Down syndrome cognitive research, First Lady Mary Pat Christie has announced that the Governor’s Official Residence, Drumthwacket, will be illuminated in blue Friday evening, March 21, to support …

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A Snowball Fight in D.C. Raises Funds for RDS

Danny Douglas saw the weather forecast. The D.C. area was going to get hit with a snowstorm, and Danny thought a snowball fight would be a great way to raise money for a charity. Stephanie Holland, a friend who says that "Research Down Syndrome will always be true to my heart", suggested RDS as the cause. …

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The RDS “Hall of Honor” for Down Syndrome Associations

It is encouraging  that more local associations are adding research support to their program services. Sizable contributions to RDS and Down syndrome cognitive research have been made by Alexander’s Angels of Long Island, Heart of Illinois Down Syndrome Association, Northern New Jersey Down Syndrome Alliance, Down Syndrome Association of Greater Charlotte, Down Syndrome Association of Central Texas, East Texas …

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Study describes Relationship between Obstructive Sleep Apnea and Cognitive Outcomes

Disrupted sleep is commonly observed throughout the lifespan of individuals with Down syndrome, with an observed incidence of 50-100%. Obstructive sleep apnea syndrome(OSAS) has been demonstrated in studies to be a key contributor to the loss of sleep quality in Down syndrome. OSAS increases with age. The relation of OSAS to cognitive and behavioral impairment …

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The 4th RDS Charity Golf Classic

RDS Dallas Golf Classic 2014_Sponsors Sign-Cropped

The 4th Research Down Syndrome Charity Golf Classic presented by Brinks is SOLD OUT!  The event is held on Thursday, April 10, 2014 at the Bridlewood Golf Club in Flower Mound, Texas.  Read more in the brochure.  Please note: Sponsorship opportunities as well as golfer entries are now sold out for the event. It is the …

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